Sport Organizations & Events
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Sport & Equipment Resources
t&f gear - internet search for track and field equipment
soccer gear - internet search for soccer equipment badminton gear - internet search for badminton equipment boccia gear - internet search for boccia equipment table tennis gear - internet search for table tennis equipment volleyball gear - internet search for volleyball equipment basketball gear - internet search for basketball equipment powerlifting gear - internet search for weightlifting equipment golfing gear - internet search for golf equipment swimming gear - internet search for swimming equipment Skeletal Dysplasia ResourcesMedical
MRC - the Medical Resource Center of Little People of America provides medical information about dwarfism and its associated conditions. nih - National Institutes of Health in Bethesda, Maryland, is the steward of medical and behavioral research for the U.S. The NIH mission is science in pursuit of fundamental knowledge about the nature and behavior of living systems and the application of that knowledge to extend healthy life and reduce the burdens of illness and disability. shrinershq.org - Shriners Hospitals for Children, a network of 22 pediatric hospitals in the U.S., Canada and Mexico providing specialized care for orthopaedic conditions, burns, spinal cord injuries and cleft lip and palate. All services are provided at no charge. hopkinsmedicine.org - Greenberg Center for Skeletal Dysplasias, McKusick-Nathans Institute of Genetic Medicine, Johns Hopkins University School of Medicine in Baltimore, Maryland. nemours.org - Alfred I. duPont Hospital for Children in Wilmington, Delaware. kidshealth.org - Q&A about dwarfism XLHnetwork.org - patient support organization for people living and dealing with X-linked hypophosphatemia (XLH), also known as vitamin-D resistant Rickets (VDRR). Community LPAonline - Little People of America organization is an excellent resource for recommended reading, adaptive products, medical advisory board members, adoption, scholarships and medical grants, and membership. LPC - Little People of Canada is concerned with the need for people of small stature to become useful members of society through education, employment and social adjustment, and to focus public attention to the fact that the magnitude of any physical limitation is a function of attitude of both the small and the average-sized person and desire to assist in these matters. APPT - Association des Personnes de Petite Taille, L'APPT est un lieu de rencontres, un espace de dialogue et d'échange des expériences. Au delà, elle assure des missions précises sur les plans médical, psychologique, administratif, social... RGA - the Restricted Growth Association is a UK based charity that provides information and support to improve the quality of life for persons of restricted growth, and their families. LPI - Little People of Ireland is the national organisation in Ireland for people with restricted growth, providing fundamental information and support to improve the quality of life for people of restricted growth, and their families. Whether you are a parent or grandparent of a child of restricted growth, or you are a person of restricted growth yourself, you are most welcome to LPI. SSPA - Short Statured People of Australia provides information and educates the community about short-statured people and dwarfism. VKM - Bundesselbsthilfeverband Kleinwüchsiger Menschen e.V. setzt sich für die Verbesserung der Lebensverhältnisse kleinwüchiger Menschen ein. DVF - Danish Dwarf Association offers support and counseling to short statured people and their families, and provides general information on all aspects of dwarfism. Crecer - Asociación Nacional para Problemas de Crecimiento, CRECER, es una organización benéfico-social, sin ánimo de lucro, cuya razón de ser es la asistencia, en todos los aspectos, a personas con problemas de crecimiento. La constituyen, esencialmente, quienes tienen hijos o familiares con ese problema, los propios afectados y quienes se interesan, por cualquier motivo, por esa problemática. morquio - International Morquio Organization and Carol Ann Foundation includes updated information about Morquio Type A, doctors, links to other families, medical information that Dr. Shunji Tomatsu has analyzed from the questionnaire (registry), which is available to all Morquio patients and their families upon request. MPS society - the Mucopolysaccharidoses (MPS) Society supports families, research, and increasing public and professional awareness about MPS and related diseases. Advocacy CoDA - Coalition for Dwarf Advocacy advocates for the rights and benefits of individuals with short stature in the areas of medicine, vocation, education, adoption, and public accommodation. aclu - The American Civil Liberties Union provides representation in courts, legislatures and communities to defend and preserve the individual rights and liberties that the Constitution and laws of the United States guarantee everyone in the country. TSA - U.S. Transportation Security Administration provides equitable special needs screening at airports for persons with disabilities and their associated equipment, mobility aids, and devices (memo, Changes in Allowances for Persons with Disabilities at Airport Security Checkpoints). AAPD - American Association of People with Disabilities organizes the disability community to be a national voice for change in implementing the goals of the Americans with Disabilities Act (ADA). Recreation Painted Turtle Camp - The Painted Turtle Camp is the sixth addition to actor and philanthropist Paul Newman’s family of Hole in the Wall Camps for seriously ill children. It is also the only multi-disease, multi-condition camp and family care center of its kind on the West Coast. CLP - Camp Little People is for children with dwarfism between the recommended ages of 5 thru 17, and their families. Camp is held annually during the second weekend of June at Camp Victory located in Millville, PA. LP Spacecamp - Space Camp for Little People is a fully accessible Space Camp Program, designed around the Pathfinder program at the U.S. Space and Rocket Center located in Huntsville, AL. |
